CAMPAIGN PAGE

The campaign has two aims:

- to raise awareness of Sarcoidosis (and in doing so prevent mis-diagnosis)

- to lobby for research into the disease.

The campaign is lead by Keith Bigland and Martine Caitlan. Full details, and information on how to get involved is here. (Note: requires registering/logging in to the SILA social network)

Some specific camaign goals right now:

UK petition: http://petitions.number10.gov.uk/sarcoidosisaware/

US petition: http://www.thepetitionsite.com/1/sarcoidosis-it-hurts

US open letter: Small Slice of Mercy

UK Press Release: PRESS RELEASE TEMPLATE for your own story

UK MP Letter: LETTER TO YOUR MP TEMPLATE - tell your MP about your story

UK Survey: British Sarcoidosis Survey 2009 with password of SILA (in capitals)

USA Survey: American Sarcoidosis Survey 2009 with password of SILA (in capitals)

Merchandise: Awareness Clothing & Accessories

Newsletter: due for release 15th March 09

News on sarcoidosis: Sarcoidosis News of Everyday People like you and me

Sponsored "wake-a-thon" Charlotte's sponsorship for staying awake

DISCLAIMER: Please note this page is open edited by members of the SILA patient community. SILA supports the work of the community in raising awareness however because this page is open edited SILA must disclaim to say that the views and actions here do not necessarily represent those of SILA itself.